Patient Champions

ACC patients are the driving force behind all ACCRF-supported research.

We are grateful to the ACC patient community for the numerous ways they contribute, including (but not limited to) submitting names for the ACC physician’s list, donating – their time, finances or precious tumor specimens- and participating in clinical trials. Listed below are a few ACC patients that we wish to highlight for their extensive contributions to ACCRF. We feel honored to have known, worked and befriended these amazing people.

Gabe Grunewald (left) with ACCRF Founder Marnie Kaufman in 2018

It takes determination to become a world-class athlete. It takes determination to face an ACC diagnosis and manage the disease over a decade. And it takes determination to share your painful and glorious journey in a very public way. Amazingly, Gabe Grunewald mustered the determination to handle all three efforts at the same time.

Read More »

Pinney Family 2018

A young mother diagnosed with ACC might be forgiven for blocking out the world and focusing on only her immediate family. Ella Pinney refused to shrink within her own world.

Read More »

Patient Champion Kara Gelb

As one of the original members of ACCRF's Board of Directors, Kara Gelb helped set the tone and direction of the foundation. She combined a keen, results-oriented mind with a velvety ability to put people at ease in coming to useful solutions.

Read More »

Doherty & Palus Families

Golf can be a good walk for a good cause. This is the lesson to be learned from the Doherty and Palus families, whose ACCRF Golf Tournaments have raised more than $75,000 for adenoid cystic carcinoma research in just two years.

Read More »

Featured Champion: Dan Dubé

Dan Dubé is remembered as the vibrant, committed and empathetic champion of the ACC patient community that, more than anyone, he helped build.

Read More »