• Find a Physician

    Find a PhysicianChoosing the right doctor is a crucial decision. However, finding doctors experienced in treating adenoid cystic carcinoma (ACC) can be a challenge. In order to help ACC patients make an informed decision in selecting doctors, the Adenoid Cystic Carcinoma Research Foundation (ACCRF) and the Adenoid Cystic Carcinoma Organization International (ACCOI) offer a listing of physicians who have treated ACC patients.

    Patients should pay special attention to each physician’s specialty (Surgery, Radiation Oncology, Radiology or Medical Oncology). Although each patient’s situation is different, the current standard of care for newly-diagnosed ACC patients usually involves surgery followed by radiation. Often, a surgeon will be the first medical professional seen by an ACC patient, with later referrals to radiation oncologists, radiologists and/or medical oncologists. Radiation oncologists may treat primary tumors that cannot be removed surgically, residual disease after surgery or recurrences. Radiologists may be effective in treating isolated metastases. Medical oncologists may suggest systemic therapy (chemotherapy and/or targeted drugs) if residual disease cannot be surgically removed or the patient has advanced metastatic disease. Ideally, a multidisciplinary team of all specialties (sometimes referred to as a “tumor board”) will review the options and proposed treatment plan for each ACC patient.

    The “Subspecialty” column of the listing may be useful for patients with tumors in less common sites or seeking particular treatments. Most patients dealing with primary tumors will seek out a surgeon focused on the head & neck or otolaryngology (ear, nose & throat). However, patients with primary tumors in the trachea or lung metastases may wish to consult with a thoracic surgeon. Other surgery subspecialties may be appropriate for patients with ACC of the vulva (gynecology) or the lacrimal gland (ophthalmology). Among the radiation oncologists and radiologists, the “Subspecialty” column indicates if the physician offers treatments other than standard photon treatment, such as protons, carbon ions, neutrons, stereotactic radiation, radiofrequency ablation (RFA), cryoablation or brachytherapy. Some patients with substantial oral surgery require a prosthodontist; they are not included in this listing, but may be searched for at the following website: www.gotoapro.org/find-a-prosthodontist/.

    Experienced and competent physicians may be located in any setting, whether in a large city or a small town. However, most physicians experienced with ACC are associated with academic medical centers where rare, complicated cases are referred and clinical trial programs are more developed. Furthermore, academic medical centers often discuss patient cases in multidisciplinary “tumor board” meetings that include surgeons, radiation oncologists, radiologists and medical oncologists, ensuring that various treatment approaches are considered for each patient. Within the United States, the National Cancer Institute designates 67 institutions as world-class, state-of-the-art programs in multidisciplinary cancer research; they are noted in the listing with “CC” for a designated “cancer center” or “CCC” for a designated “comprehensive cancer center”.

    The names of physicians included in this listing have been provided by ACC patients. The Physicians List is alphabetized by country or state (if in the United States), then by city, and then by institution. Physicians at each institution are organized by specialty before being alphabetized by last name.

    » Download the ACCRF Physicians List

    LEGAL DISCLAIMER: The information in the physicians list is for reference purposes only and is provided on an “as-is” basis. It is not intended as a tool for verifying the credentials, qualifications, or abilities of any physician listed. Inclusion in the list does not constitute an endorsement or recommendation of any physician or hospital by ACCRF or ACCOI; nor does omission imply disapproval. You assume full responsibility for any communications with any physician or hospital you contact through the list. ACCRF and ACCOI will not be liable to you or to anyone for any decision made or action taken by you in reliance on the information provided in the list. You may not use or copy any part of the list except for your own personal reference purposes. You may not download, republish, sell, or otherwise distribute any part of the list for any purpose.