Find a Physician
Choosing the right doctor is a crucial decision. However, finding doctors experienced in treating adenoid cystic carcinoma (ACC) can be a challenge. In order to help ACC patients make an informed decision in selecting doctors, the Adenoid Cystic Carcinoma Research Foundation (ACCRF) and the Adenoid Cystic Carcinoma Organization International (ACCOI) offer a listing of physicians who have treated ACC patients.
Patients should pay special attention to each physician’s specialty (Surgery, Radiation Oncology or Medical Oncology). Although each patient’s situation is different, the current standard of care for newly-diagnosed ACC patients usually involves surgery followed by radiation. Interventional radiology or systemic therapy (chemo and targeted drugs) may be recommended if residual disease cannot be surgically removed or advanced metastatic disease is apparent. Often, a surgeon will be the first medical professional seen by an ACC patient, with later referrals to radiation oncologists and medical oncologists. Ideally, a multi-disciplinary team of all three specialties will review the proposed treatment plan for each ACC patient.
The substantial majority of physicians experienced with ACC are associated with academic medical centers where rare, complicated cases are typically referred. The names of physicians included in this listing have been provided by ACC patients. The Physicians List is alphabetized by country or state (if in the United States), then by city, then by institution; physicians at each institution are organized by Specialty (Surgery, Radiation Oncology and Medical Oncology) before being alphabetized by last name.
The “Subspecialty” column on the far right may be particularly useful for patients with tumors in less common sites or seeking particular treatment modalities. Most patients dealing with primary tumors will seek out a surgeon focused on the head & neck or otolaryngology (ear, nose & throat). However, patients with primary tumors in the trachea or lung metastases may wish to consult with a thoracic surgeon. Other surgery subspecialties may be appropriate for patients with ACC of the vulva (Gynecology Oncology), the lacrimal gland (Ophthalmology) or elsewhere. Among the radiation oncologists, the “Subspecialty” column indicates if the physician offers a radiation modality other than standard photon treatment.
LEGAL DISCLAIMER: The information in the physicians list is for reference purposes only and is provided on an “as-is” basis. It is not intended as a tool for verifying the credentials, qualifications, or abilities of any physician listed. Inclusion in the list does not constitute an endorsement or recommendation of any physician or hospital by ACCRF or ACCOI; nor does omission imply disapproval. You assume full responsibility for any communications with any physician or hospital you contact through the list. ACCRF and ACCOI will not be liable to you or to anyone for any decision made or action taken by you in reliance on the information provided in the list. You may not use or copy any part of the list except for your own personal reference purposes. You may not download, republish, sell, or otherwise distribute any part of the list for any purpose.